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Whether
you help by changing your parents’ tires or changing their
Depends, you are a caregiver Just when you think your own kids are
about to become more independent, giving you more time for yourself,
you find yourself with responsibilities for your folks. Everyone
deals with this differently. People do what they can. Most families
do yeoman work for their older members. You should never feel guilt
for what you can’t or don’t do. Just feel good about
what you are doing to help, and look for other resources to fill
in the gaps.
If
you find that you have become the ham and cheese between the slices
of bread, there are things you can do to make your life easier,
and to make your caregiving role more pleasant for you and those
around you.
1.
Respite. Give yourself a break. Caregiving shouldn’t
be all work and no play. Think of it as a job—and no job comes
without time off. No boss can work you 24/7 forever. Learn that
you are not indispensable. While others may not do exactly what
you do, they can do something else to help. Even the care recipient
enjoys a break from being the sole object and subject of one person’s
attention. Schedule time off. Don’t leave it to chance—the
chance will never materialize. Plan for respite. Call in favors.
Set up a caregiving exchange with other caregivers just as you used
to arrange play dates for your kids. Do not be afraid to ask friends
and other family members to pitch in. Even teenagers can be utilized.
Consider hiring a personal care attendant to come in on a regular
basis. Then use your time wisely. Certainly this will allow you
to do your chores more easily, but also, give yourself a mini-vacation.
Even if all you do is take a nap, go for a walk or read a book,
you are rejuvenating and refreshing your spirit. And every once
in a while go for broke. Take a few days off. Run away to an island,
or to your sister’s house. Go somewhere. You can make arrangements
for your family member to have respite in a local assisted living
or nursing facility with around the clock, professional care, activities,
and social interaction with others their age. It just might seem
like a mini-vacation to them, too.
2.
Add fun to your lives. If your family member were in assisted
living or a nursing facility, they would be involved in a plethora
of activities designed to keep them involved and interested in the
world around them. Many of these activities are centered on the
kinds of things that were meaningful in their earlier lives. You
can replicate this at home. It’s easy.
· Turn on the music.
Even for people who are quite severely cognitively impaired, music
speaks the universal language and often, people with musical talents
retain their skills long past the time that they can manage other
tasks. Music reaches parts of the brain that can recognize it.
If your family member is able, sing and dance. Have a few spontaneous
moments of pleasure. You can even dance with a person who is in
a wheelchair. If dance movement is impossible, then sing and clap
along. Have musical evenings with music from the 30’s and
40’s or their favorite era. Get out the kazoos. Bring on
the drums. Sing your hearts out.
·
Movies and Popcorn.
Most people love watching movies. Either take your loved one off
to the matinee or have one at home. Pop popcorn, eat jujubees
and watch Bing Crosby and Bob Hope on the road. Schedule this
in so everyone has something to look forward to.
·
Meaningful Activities.
Just because someone is old and frail, does not mean they need
to sit all day watching TV or napping. Let them help around the
house to the extent that they safely can. Modify the tasks to
their abilities. Even cognitively impaired people can fold simple
laundry, put out placemats, dry dishes, sweep the sidewalk, or
sort coins. Remember that the point isn’t that the task
needs to be done well. It is the doing and enjoyment that counts.
Consider what your loved one used to enjoy doing, or what they
did as a profession and come up with things that meet those interests.
When you modify these activities, do not make them childlike.
Just make them do-able so that the end result is not frustration.
Giving people something they can succeed at enhances their self-esteem,
and reduces boredom and the behavioral problems that stem from
it.
·
Play Games. If your
family member is cognitively intact, play games that they enjoy.
Whether it is Monopoly or Go Fish, it will pass the time pleasantly,
and you will find that caregiving can be great fun. Get your kids
involved. Get your caregiver support group to schedule “Game
Night” and have two or three tables of options. If your
loved one has memory problems or is unable to concentrate, simplify
the games. The library at the Alzheimer’s Association has
many books with ideas for games for memory-impaired people. Word
Association, Name that Tune, simple crosswords, or games from
their childhood can be modified to their abilities. Again, remember
that the key is to have fun, not be tested on knowledge. Answers
do not have to be right to be good. Spelling is unimportant. Perfection
is unnecessary—laughing is a must.
·
Have a Picnic.
Make lunch special. If the weather is good, pack a lunch
and go to the park—or even the back porch. On a cold or
rainy day, spread a blanket in front of the fireplace and picnic
in comfort. Forget the china and go for the paper plates. You
will have fun and cut down on your work at the same time.
· Go on Outings.
Plan to get out of the house together. Go for a walk. Go to the
mall. Go to a movie. Go to the park. Go have lunch or dinner with
friends. Go have fun together.
Care
giving and care receiving should not be only about baths and meals.
It should also be about being a family and doing the things that
families like to do together. Adding some joy and laughter into
a situation that potentially can be frustrating and stressful will
sure make your life easier, and it will make your family member
feel less like a burden and more like a very lucky person to have
such a great kid.
Barbara
Payne, MSW
ElderCare Strategies, Inc.
Geriatric Consulting and Care Management
READ ABOUT
CAREGIVING FROM A DISTANCE HERE.
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